Programme

Slides from each session can be found in the table below.

Day 1 (9:00-17:00)

TimeTopicSpeakerSlides
9:00-10:00Session A: From vision to reality
Journalen 10 years! Retrospective of development in SwedenModerated by: Maria Hägglund, Isabella Scandurra, Hanife Rexhepi
Launch of international research networkMaria Hägglund, Anna Kharko, Charlotte BleaseA2
10:00-10:30Keynote: A patient perspective of access to online records in the UK: fragmented and confusingTessa RichardsA3
Break
11:00-12:00Session B: Patients’ online record access – opportunities and challenges
Patients’ online record access – opportunities & challenges: EstoniaPeeter RossB1
Patients’ online record access – opportunities & challenges: GermanyYvonne EisenmannB2
Patients’ online record access – opportunities & challenges: UKBrian McMillanB3
Q&A
LUNCH and posters mingle 
13:15-14:30Session C: Patient perspectives on healthcare and research
From lost in the system to empowered parent-researcherElin SalmirantaC1
Towards a Culture of Equal Partnerships with PatientsAnna ClarebornC2
Spetspatienter – How we can help improve healthcare and researchSara RiggareC3
Q&A
Coffee break
15:10-16:30Session D: Mental health and ethical challenges
Patients’ access to mental health recordsAnnika Bärkås & Julian SchwarzD1
Ethical challenges raised by use of client-accessible records among adolescentsJanine Benjamins & Tessa LolkemaD2
Q&A
16:30-17:00Keynote: US perspective – OpenNotes: patients’ rights, data access, and policyCatherine DesRochesD3

Day 2 (9:00-16:00)

TimeTopicSpeakerSlides
9:00-10:15Session E: World Usability Day Nov 10!Maria Hägglund, Isabella Scandurra, Hanife RexhepiE0
Health Professionals’ and Patients’ Experience with Patients Accessing their Electronic Health Record in NorwayMonika JohansenE1
To read or not to read – Why do some patients choose to read their PAEHR and others do not?Irene Muli & Hanife RexhepiE2
Usability of the national patient portal in FinlandSaija Simola
Q&A
Break
10:45-12:00Session F: Proxy access to electronic health records
Proxy access to electronic health records – Experiences from the USCatherine DesRochesF1
Adolescent and parent access to electronic health records – Experiences from SwedenJosefin HagströmF2
Proxy and young people’s access to electronic health records – Change of legal framework in Sweden?Martin PriceF3
Q&A
LUNCH and poster mingle
13:00-13:50Session G: European Health Data Space
EHDS and patient control of health dataMichel SilvestriG1
Implications of EDHSRose-Mharie ÅhlfeldtG2
Q&A
Break
14:20-15:00Session H: Health records in context: UK vs Sweden
Health records in context: UKRichard FittonH1
Health records in context: SwedenGunnar Klein, Ture Ålander
15:00-15:30Keynote: Medical Ethics and Online Record AccessCharlotte BleaseH3
15:30-16:00Reflections and take awaysModerated by Maria Hägglund, Isabella Scandurra, Hanife Rexhepi

Organised with support from