Slides from each session can be found in the table below.
Videos from the conference can be found on >> this page <<
Day 1 (9:00-17:00)
| Time | Topic | Speaker | Slides |
|---|---|---|---|
| 9:00-10:00 | Session A: From vision to reality | ||
| Journalen 10 years! Retrospective of development in Sweden | Moderated by: Maria Hägglund, Isabella Scandurra, Hanife Rexhepi | ||
| Launch of international research network | Maria Hägglund, Anna Kharko, Charlotte Blease | A2 | |
| 10:00-10:30 | Keynote: A patient perspective of access to online records in the UK: fragmented and confusing | Tessa Richards | A3 |
| Break | |||
| 11:00-12:00 | Session B: Patients’ online record access – opportunities and challenges | ||
| Patients’ online record access – opportunities & challenges: Estonia | Peeter Ross | B1 | |
| Patients’ online record access – opportunities & challenges: Germany | Yvonne Eisenmann | B2 | |
| Patients’ online record access – opportunities & challenges: UK | Brian McMillan | B3 | |
| Q&A | |||
| LUNCH and posters mingle | |||
| 13:15-14:30 | Session C: Patient perspectives on healthcare and research | ||
| From lost in the system to empowered parent-researcher | Elin Salmiranta | C1 | |
| Towards a Culture of Equal Partnerships with Patients | Anna Clareborn | C2 | |
| Spetspatienter – How we can help improve healthcare and research | Sara Riggare | C3 | |
| Q&A | |||
| Coffee break | |||
| 15:10-16:30 | Session D: Mental health and ethical challenges | ||
| Patients’ access to mental health records | Annika Bärkås & Julian Schwarz | D1 | |
| Ethical challenges raised by use of client-accessible records among adolescents | Janine Benjamins & Tessa Lolkema | D2 | |
| Q&A | |||
| 16:30-17:00 | Keynote: US perspective – OpenNotes: patients’ rights, data access, and policy | Catherine DesRoches | D3 |
Day 2 (9:00-16:00)
| Time | Topic | Speaker | Slides |
|---|---|---|---|
| 9:00-10:15 | Session E: World Usability Day Nov 10! | Maria Hägglund, Isabella Scandurra, Hanife Rexhepi | E0 |
| Health Professionals’ and Patients’ Experience with Patients Accessing their Electronic Health Record in Norway | Monika Johansen | E1 | |
| To read or not to read – Why do some patients choose to read their PAEHR and others do not? | Irene Muli & Hanife Rexhepi | E2 | |
| Usability of the national patient portal in Finland | Saija Simola | ||
| Q&A | |||
| Break | |||
| 10:45-12:00 | Session F: Proxy access to electronic health records | ||
| Proxy access to electronic health records – Experiences from the US | Catherine DesRoches | F1 | |
| Adolescent and parent access to electronic health records – Experiences from Sweden | Josefin Hagström | F2 | |
| Proxy and young people’s access to electronic health records – Change of legal framework in Sweden? | Martin Price | F3 | |
| Q&A | |||
| LUNCH and poster mingle | |||
| 13:00-13:50 | Session G: European Health Data Space | ||
| EHDS and patient control of health data | Michel Silvestri | G1 | |
| Implications of EDHS | Rose-Mharie Åhlfeldt | G2 | |
| Q&A | |||
| Break | |||
| 14:20-15:00 | Session H: Health records in context: UK vs Sweden | ||
| Health records in context: UK | Richard Fitton | H1 | |
| Health records in context: Sweden | Gunnar Klein, Ture Ålander | ||
| 15:00-15:30 | Keynote: Medical Ethics and Online Record Access | Charlotte Blease | H3 |
| 15:30-16:00 | Reflections and take aways | Moderated by Maria Hägglund, Isabella Scandurra, Hanife Rexhepi |
Organised with support from
